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Stand Against MND

1980. Sam Perkins

Sam Perkins, aged 40, from Nottingham, is a triathlete who set up ‘Stand Against MND’ in 2019 after being diagnosed with Motor Neurone Disease and has raised £130,000 to fund MND research and palliative care for those affected by MND.

Despite now being wheelchair bound and requiring a ventilator, Sam still took part with friends in the Outlaw Half triathlon in Nottingham last year and continues to find new ways of raising funds and awareness, including bringing together illustrators to produce charity calendars and artwork.

In a personal letter to Sam, Prime Minister Rishi Sunak said:

“I want to thank you for all you are doing to help people like yourself who have been diagnosed with Motor Neurone Disease.

“I was amazed to hear how you completed last year’s Outlaw Half Triathlon while in a wheelchair and on a ventilator. Your strength and determination are truly inspiring.

“Through your fantastic fundraising and your charity, Stand Against MND, you are helping to progress vital research. I share your hope and belief that one day we will find a cure for this awful disease.”

Ruth Edwards, Sam’s local MP, said:

“I was delighted when I heard that Sam was going to receive a Point of Light Award from the Prime Minister. The work Sam has done to raise awareness about Motor Neurone Disease is inspirational. Since establishing the Charity ‘Stand Against MND’ in 2019, Sam has worked tirelessly to raise money for greater levels of MND research as well as bringing more public attention to this underfunded and devastating disease. Sam’s efforts have been recognised with multiple awards locally and this Point of Light Award is further recognition of his amazing work. I could not think of a more worthy recipient than Sam.”

Sam said:

“I am honoured and humbled to receive a Point Of Light award. Following my MND diagnosis I made a decision to do everything possible to raise the profile of the disease, and to try and improve the journeys of people who suffer the misfortune of MND in the years to come. I have no intention of slowing down and will continue to ‘Stand Against MND’ for the benefit of those patients and their families. I would like to dedicate this award to my family and friends, along with all of my fellow MND warriors.”

See more about ‘Stand Against MND’

The daily Points of Light award recognises outstanding individual volunteers - people who are making a change in their community.

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