1351. Alex Eades
Alex Eades, from Brighton, has raised over £200,000 for medical research at King’s College London into rare brain tumours in memory of her daughter Charlotte, who died a week before her 19th birthday in 2016 from glioblastoma.
Charlotte had raised awareness on her own YouTube channel, known as Charlotte’s Battle Against Glioblastoma (BAG), and Alex has continued her legacy to reach out to over 7.5 million users worldwide. ‘Charlotte’s BAG’ is one of the only UK charities specifically focussing on raising funds for research into, and awareness of, glioblastoma multiforme, a very rare and, currently, nearly always terminal form of brain cancer that can affect anyone of any age.
In a personal letter to Alex, Prime Minister Boris Johnson said:
“The pain of losing Charlotte must be with you every day and yet you have managed not only to continue her incredible work in raising awareness of glioblastoma, but also to raise hundreds of thousands of pounds to fund vital research.
What you do to support other families and patients, helping them to receive the very best care, is a wonderful and lasting tribute to your daughter.”
“I am deeply honoured to have received a Points of Light award. After the passing of my daughter, Charlotte, aged 19, my son and I decided to start a charity in her name. Charlotte’s BAG is one of the only UK charities specifically focussing on raising funds for research into, and awareness of, glioblastoma. This very rare and currently nearly always terminal form of brain cancer can affect anyone of any age. Since its launch in October 2016, we have raised over £200,000. This money has been used by King’s College, London, in ‘Charlotte’s Lab’, to speed up test results – Some of Charlotte’s results came back after she had passed. We self-fund and cover personally the cost of any expenses. I am immensely grateful to Points of Light for recognising our work. We continue to spread awareness through Charlotte’s YouTube channel, where her original videos documenting her cancer journey, continue to inspire and inform others around the world.”