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Scotland’s youngest MND sufferer becomes award winning campaigner

534. Lucy Lintott

Scotland’s youngest Motor Neurone Disease sufferer has turned her terminal diagnosis into an opportunity to help others.

Campaigner Lucy Lintott, 21 from Moray, was diagnosed with Motor Neurone Disease nearly three years ago. With the standard life expectancy for the condition at three years, Lucy decided not to allow her terminal illness to win and is determined to make every day count. Six months after being diagnosed Lucy started ‘Lucy’s Fight’, a blog about her journey. After talking with her scouting leader Dougie McPhee, she was prompted to write a ’bucket list’ and has raised over £100,000 in funds for MND Scotland.

As part of her fundraising campaign, Lucy has completed a range of events and personal challenges in spite of her condition, including a sponsored five day walk covering 65 miles with twenty of her friends and family, music nights, fun days and auctions with the help and support of her community. She regularly gives speeches on MND and recently addressed 1,000 people at a youth and philanthropy initiative event. In total she has raised over £100,000.

Lucy’s daily blog helps readers understand the daily challenges of the condition and raises vital awareness of how it affects people like her.

Prime Minister David Cameron said:

“Lucy has shown incredible courage and determination in taking her own experience of Motor Neurone Disease and using it to help others. Through her blog, she is raising awareness of MND, tackling misconceptions and inspiring a huge number of donations which are making a real difference in the lives of many others with the disease. Lucy is an inspiration and I am delighted to recognise her service to others by making her the 534th UK Point of Light.”

The daily Points of Light award recognises outstanding individual volunteers - people who are making a change in their community.

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